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PPMD Convenes Global Community in Orlando to Tackle Duchenne and Becker

PPMD Convenes Global Community in Orlando to Tackle Duchenne and Becker

More than 1,000 families, researchers, and clinicians are gathering in Orlando this week for the 32nd annual Parent Project Muscular Dystrophy conference. The three-day event serves as the premier global forum for updates on gene therapy, cardiac health, and the evolving standards of care for those living with Duchenne and Becker.

The conference, which runs June 25–27, marks a significant milestone in the organization's three-decade history. CEO Katherine Beaverson emphasized that the event provides a critical space for stakeholders to navigate the recent breakthroughs and setbacks in the field. The agenda is built around multi-dimensional care, with specific tracks dedicated to the lived experience of patients, including sessions for newly diagnosed families, teens, and siblings.

Technical discussions will span the latest in exon-skipping approaches and the future of gene therapy, alongside essential guidance on transition planning and mental health. The programming also addresses specific needs for the Becker community and provides direct access to specialists through one-on-one appointments with physical therapists and genetic experts. Beyond clinical sessions, the event emphasizes community building, featuring a resource fair and social gatherings designed to foster connections among those affected by these neuromuscular conditions. The conference is supported by a wide array of industry partners, including elite sponsors Capricor Therapeutics and Sarepta Therapeutics.

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